Below is a link to an article about my youngest son, Will, running in this month’s Northwest Arkansas family magazine “Peekaboo.” It describes some of the journey we have been on with him and a rare brain disorder called Glut1 Deficiency Syndrome.
There is an annual fundraising campaign called “Love Some1 with Glut1.” It starts this week on Valentine’s Day and runs through February 28th which is Rare Disease Day. Everything raised goes toward the Glut1 Foundation to raise awareness, educate, and fund research.
Here is a link to Will’s fundraising page… http://g1dfnd.ejoinme.org/Leiffer
I would be forever grateful for anything you can give and would love for you to pass this on as well. Thanks, guys!