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Posted

[Please pardon the fishing discussion interruption. - The following posted with permission of the moderator. Thank you, Phil!]

Below is a link to an article about my youngest son, Will, running in this month’s Northwest Arkansas family magazine “Peekaboo.” It describes some of the journey we have been on with him and a rare brain disorder called Glut1 Deficiency Syndrome.

http://www.peekaboonwa.com/gods-will/

There is an annual fundraising campaign called “Love Some1 with Glut1.” It starts this week on Valentine’s Day and runs through February 28th which is Rare Disease Day. Everything raised goes toward the Glut1 Foundation to raise awareness, educate, and fund research.

Here is a link to Will’s fundraising page… http://g1dfnd.ejoinme.org/Leiffer

I would be forever grateful for anything you can give and would love for you to pass this on as well. Thanks, guys!

- David



Posted

Cool pic!! Thanks for sharing. I hope you reach some folks. We should take care of our OAF members.

Sorry to hear about you and your sons struggles.

Need marine repair? Send our own forum friend "fishinwrench" a message. 

He will treat you like family!!! I owe fishinwrench a lot of thanks. He has been a great mechanic with lots of patience!

Posted

That's tough to read about. My little boy just turned 1 last month, can't even begin to imagine the struggles you're all going through.

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