1969Larson Posted February 9, 2015 Posted February 9, 2015 [Please pardon the fishing discussion interruption. - The following posted with permission of the moderator. Thank you, Phil!] Below is a link to an article about my youngest son, Will, running in this month’s Northwest Arkansas family magazine “Peekaboo.” It describes some of the journey we have been on with him and a rare brain disorder called Glut1 Deficiency Syndrome. http://www.peekaboonwa.com/gods-will/ There is an annual fundraising campaign called “Love Some1 with Glut1.” It starts this week on Valentine’s Day and runs through February 28th which is Rare Disease Day. Everything raised goes toward the Glut1 Foundation to raise awareness, educate, and fund research. Here is a link to Will’s fundraising page… http://g1dfnd.ejoinme.org/Leiffer I would be forever grateful for anything you can give and would love for you to pass this on as well. Thanks, guys! - David
1969Larson Posted February 9, 2015 Author Posted February 9, 2015 Just realized I should probably include a picture of the little guy out looking for stripers with me...
J-Doc Posted February 9, 2015 Posted February 9, 2015 Cool pic!! Thanks for sharing. I hope you reach some folks. We should take care of our OAF members. Sorry to hear about you and your sons struggles. Need marine repair? Send our own forum friend "fishinwrench" a message. He will treat you like family!!! I owe fishinwrench a lot of thanks. He has been a great mechanic with lots of patience!
bluebasser86 Posted February 9, 2015 Posted February 9, 2015 That's tough to read about. My little boy just turned 1 last month, can't even begin to imagine the struggles you're all going through.
1969Larson Posted February 14, 2015 Author Posted February 14, 2015 The 2-week fundraising campaign officially starts today. Every bit helps. Thank you!
1969Larson Posted February 21, 2015 Author Posted February 21, 2015 1 Week to go. Thank you to everyone that has given. We are at $6,500 towards the $10,000 goal. Funding for rare diseases is very hard to come by so this is huge! Every dollar helps. Join us please! http://g1dfnd.ejoinme.org/Leiffer J-Doc 1
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