Cancer Treatment?

[patfish]

14 hours ago, ness said:

And be your own advocate. Do not be passive or intimidated. Learn, ask questions and get answers. 

I currently have brain cancer.  Anaplastic Astrocytoma.  They removed most of it via surgery but had to leave some so I could do stuff like walk and talk and see and hear.  

And if you're a big dummy like me, I'm "ruined" according to Wrench, I write down all of my questions in a little spiral notebook and take that with me to every Dr appt.  Heck, the last time I went to see my neurosurgeon I was asking questions out of my notebook and he asked to see it.  I told him write down everything you just said cause in 10 minutes I won't remember.  Had a hard time finding the Patmobile in the parking garage but I had his answers in my notebook.  For the WIN.  Carry on y'all.  

[BilletHead]

2 minutes ago, patfish said:

I currently have brain cancer.  Anaplastic Astrocytoma.  They removed most of it via surgery but had to leave some so I could do stuff like walk and talk and see and hear.  

And if you're a big dummy like me, I'm "ruined" according to Wrench, I write down all of my questions in a little spiral notebook and take that with me to every Dr appt.  Heck, the last time I went to see my neurosurgeon I was asking questions out of my notebook and he asked to see it.  I told him write down everything you just said cause in 10 minutes I won't remember.  Had a hard time finding the Patmobile in the parking garage but I had his answers in my notebook.  For the WIN.  Carry on y'all.  

               Think about you all the time buddy!

[Johnsfolly]

2 hours ago, MOPanfisher said:

Cacer is one of those weird things in which all types are similar and completely different.  Some types are very treatable and others are not.  Sometimes the treatment works for many years aka remission and then one day it spreads through the whole body.  Lots of clinical research going on as to how much chemo/radiation for how long etc., rotating treatments to keep it from learning (for lack of a better word) how to beat the treatment regime.  I lie it to spray for weeds, eventually weeds and grass develop a certain amount of immunity to things like roundup, but hit them with a different chemical and bam kaput.  Likewise radiation is similar to spot spraying, you target a very small place, chemo is more of a boom spray approach whn it is wide spread in the body.  All of them have some effects on the human body and are similar in that the attempt is to kill cancer cells faster than you kill the host (person).   If chemo, Bone Marrow Transplant, etc. gain me 5 years or 15 years of usable life life to spend with my wife, kids, grandkids, fishing, and enjoying life, even if at a reduced level then I will happily sign up.  I can still do most of the things I used to, maybe not as well and certainly not as energetically but can still do them.  Last Dr. Visit at KU basically confirmed Mercy Dr, said we could either continue current meds which are working and should for another year, or go through another BMT now, with no real medical evidence to suggest one is better than the other, I opted to continue current treatment and delay the inevitable 2nd BMT for as long as I can, because it sucked, doable but not something to put on a bucket list to accomplish.  Waiting for one of those medical breakthroughs that change the game.

Good luck! We'll be thinking about you.

[ness]

22 minutes ago, patfish said:

And if you're a big dummy like me, I'm "ruined" according to Wrench, I write down all of my questions in a little spiral notebook and take that with me to every Dr appt.  Heck, the last time I went to see my neurosurgeon I was asking questions out of my notebook and he asked to see it.  I told him write down everything you just said cause in 10 minutes I won't remember.  Had a hard time finding the Patmobile in the parking garage but I had his answers in my notebook.  For the WIN.  Carry on y'all.  

I had knee replacement a while back and I kept a pretty thorough notebook before and after. I felt like I needed to have questions written down before I went in or they'd get forgotten or lost in the conversation. SOO much information gets thrown at you it's almost impossible to keep track of it all. And since I was on pain meds for a while afterward and in a fog, I didn't want to mess that up so I wrote down when I took stuff. 

Best of luck to you. 

[oneshot]

50 minutes ago, patfish said:

I currently have brain cancer.  Anaplastic Astrocytoma.  They removed most of it via surgery but had to leave some so I could do stuff like walk and talk and see and hear.  

And if you're a big dummy like me, I'm "ruined" according to Wrench, I write down all of my questions in a little spiral notebook and take that with me to every Dr appt.  Heck, the last time I went to see my neurosurgeon I was asking questions out of my notebook and he asked to see it.  I told him write down everything you just said cause in 10 minutes I won't remember.  Had a hard time finding the Patmobile in the parking garage but I had his answers in my notebook.  For the WIN.  Carry on y'all.  

Sorry about what is going on with you.

One of my Sisters they operated on her she couldn’t do nothing. Thought it was cool her husband stayed with her . But we found out the Doctors told him she wouldn’t live over five years. Well she was living longer and she wasn’t in his best thoughts. She went to a Nursing Home.

Because of my Medication I forget. GPS is good if I remember I have it and remember how it works. Have to check when I doing something that everything is in order. I was cooking yesterday. Why is that Skillet smoking? Oh I left the fire on. I can’t hear and have left my Pickup running for hours. Anymore I check the gages.

oneshot

[oneshot]

Know someone with Terminal Cancer. Doing Chemo but he is also buzzing with Marijuana all the time.

With my pain all they do with me is Pain Meditation. Lots of side effects. Plus have to take a Drug Test making sure I’m taking it. 
 

oneshot

[jdmidwest]

8 hours ago, patfish said:

I currently have brain cancer.  Anaplastic Astrocytoma.  They removed most of it via surgery but had to leave some so I could do stuff like walk and talk and see and hear.  

And if you're a big dummy like me, I'm "ruined" according to Wrench, I write down all of my questions in a little spiral notebook and take that with me to every Dr appt.  Heck, the last time I went to see my neurosurgeon I was asking questions out of my notebook and he asked to see it.  I told him write down everything you just said cause in 10 minutes I won't remember.  Had a hard time finding the Patmobile in the parking garage but I had his answers in my notebook.  For the WIN.  Carry on y'all.  

Dang, I had not seen that it had come back.  Keep fighting it.

[Terrierman]

To all you people who are having or have had cancer treatments - I've not gone through it myself, but have seen enough to know that it's about as tough as it gets.  

You have my sincerest best wishes for good outcomes, each and every one of you..

[fishinwrench]

11 hours ago, patfish said:

I currently have brain cancer.  Anaplastic Astrocytoma.  They removed most of it via surgery but had to leave some so I could do stuff like walk and talk and see and hear.  

And if you're a big dummy like me, I'm "ruined" according to Wrench, I write down all of my questions in a little spiral notebook and take that with me to every Dr appt.  Heck, the last time I went to see my neurosurgeon I was asking questions out of my notebook and he asked to see it.  I told him write down everything you just said cause in 10 minutes I won't remember.  Had a hard time finding the Patmobile in the parking garage but I had his answers in my notebook.  For the WIN.  Carry on y'all.  

You can't remember what your doctors said 10 minutes ago, but the stupid $#!t that I say sticks like glue.

How does THAT work?   

Maybe your doctors need speaking lessons from yours truly.  I'm sure those smart fellas can figure out a way to write-off my fees.  😊 

Feel free to give them my number for consultation, and I'll forward them my Vinmo account info.  👍 

I'll give you a 15% cut for the referral.  😊

[MOPanfisher]

Some doctors only speak in medical terms and others are pretty good at putting it in regular speak.  Fortunately my wife is a nurse so sometime I just set quietly and watch as she and the doctor "talk", feel like a dog at the vet.  Recently since she usually isn't allowed in she has to listen via speaker phone, or if it's a normal visit she just get a Marco Polo, and she checks all the labs etc on line.  Hell I am just the test dummy!  

The days I do infusions I always look around at the others there and think to myself, ya know I aint doing too bad, I suspect when I went through more rigorous stuff others looked at me and though the same thing.